Behind The Scenes

I have Lupus, RA and Neuropathy, the good news is that it does not have me!
By no means does it mean that I am in denial, though I sometimes think that I would be better off not knowing. Ignorance IS bliss! I think by this time most of us living with this invisible disease/s want to fly off our rocker and do unthinkable things to the next person saying “But you do not look ill at all, You look so good!”

Ermmm…yes - thanks; I only look good because I had to get up at 04:30 to try too get ready for work. Breakdown time:

• wake up and deal with the cramps in your legs, feet, hands and oh, just every where else!


• Get out off bed (Gods this is hard part)


• Waddle of to the bathroom – where the beepers did my legs and my feet go??!!


• Choices…brush teeth or ty to get a decent hairstyle (The teeth won and the hair gets the gel)


• Breakfast…arghhh, not big on my list so early in the morning, the fact is; no breakfast no meds and if you are a sucker for punishment, skip your meds! Let us pause on the meds for a moment. For those not familiar with all these weird dis-eases, us poor buggers take between 5-9 tabs in the morning – EVERY morning and have to cope with all those nice side effects through out the whole day. My personal favourite – falling asleep with my eyes open in front of my PC at 11 am! I must say it is an art to achieve that, nobody even notices ( if they do, they are polite enough not to mention it!)


• Getting dressed is next on the list…you know that nice shirt with red buttons and boots with a bit of a heel that you bought a month ago? Well, the sad news is, is that you will not be wearing it today – in fact you have never worn it outside the fitting room.


• Yelling at the children – this takes its toll, by the time you got them dressed and ready for school, you are ready to get back into bed.


• Drive to work – I can not remember my fingers hurting this much this morning, must be imagining it, OK maybe not, seeing that they are turning three different colours. The window goes down and the hand goes out – need to get some circulation back into the right hand, then it is the left hand’s turn (this one just gets rubbed from the palm to the finger tips)

Well this how most of my mornings go. Sometimes it is worse, sometimes it is better. Hell, I wish I could have one NORMAL day for a change. No cramps, no headaches, no tiredness – just…yes…nothing (and no I do not mean death!)